Domino Thoughts

My son Andrew has Cystic Fibrosis, a life-threatening genetic disease. 30,000 children and adults in the US have CF. Even as recently as the 1980's, the average life expectancy of a CF patient was less than 15 years.  Today, the average is 37 years. This is due to the remarkable research and the results of that research that is funded in part or in whole by the Cystic Fibrosis foundation.  The CF Foundation is now funding pharma companies to help develop treatments for the symptoms that affect CF patients as well as funding research to find a cure for CF.  

Andrew is now 14 years old, in eighth grade and looking forward to starting high school next year. He plays on two baseball teams and the school soccer team, as well as running around with friends. He is considered by his doctors as a very healthy CF patient, but still was hospitalized twice in the last 18 months for operations to remove mucus build-up in his sinuses, a side effect of his CF, as well as a CF "tune-up."  

This is an exciting time for CF researchers and CF families. One of the drugs funded by the CF Foundation is in Phase 2 trials. This drug treats one of the basic causes of CF, and the results so far are very encouraging.

The Great Strides walk that my family will participate in next month is the major fund-raising effort of the Cystic Fibrosis Foundation and provides the funds to support the types of research that are yielding fantastic results.  Please consider making a donation at my walk page to help us find a cure for Andrew and everyone else that has Cystic Fibrosis. Ninety cents of every dollar donated to CFF goes towards research and other efforts to support CF patients.

Please donate and help Andrew and others with CF. For more information about Andrew and CF, check out the Andrew's Angels website.

Thanks!